Thursday, April 19, 2018

What a year it's been, so far.

Hi Friends, So sorry for the lack of updates. McKenzie's health has taken over lately, but we're happy to report she's on the mend and things are looking up for the first "real" time in her GI history.

Earlier last month, McKenzie's health continued failing as we began weekly visits to GI and the emergency department, again. After the inability to get anywhere, we made the decision to seek a second opinion - Thank God! (Don't get me wrong, we love A.P.H but something wasn't right - we needed someone to do something.. more!)

I took McKenzie to N.C.H 30 minutes from A.P.H and she was admitted - admitted with low blood sugar, high liver enzymes, severe protein calorie malnourishment (could have caused or already began the process of organ failure) blood in her feeding tube and severe dehydration. McKenzie had the longest week while doctors ran tests, exams and ultimately were able to help renourish, rehydrate and figure out the cause for the on-going symptoms and a plan moving forward.

McKenzie began feeling better, almost immediately! Since then, she has had many firsts. She has sat unassisted, drank from her sippy cup, wants to crawl, wants to play - she no longer seems to be in the haze she seemed stuck in for so long. While we are on the road to recovery, she still has a long road of GI obstacles to face as her pancreas, liver, stomach and intestines require work.

This last admission took its tole on us, as her parents, thus my reasoning for being so absent, but I hope to soon update more frequently as we settle back into a solid routine.



                                           By the way - McKenzie is getting glasses!!

What a year it's been, so far.